I, like most people, become consumed with our everyday 'hassles'. Mine usually consist of Maleigha's attitude and not being as big of a helper she thinks she's being. I feel bad for getting on to her at times but I think..."how is she ever going to learn....right?". I noticed a friends' post on FB earlier this week about a little girl...not that much older than Maleigha that was sadly...living her last few days.
I found the parents page and then the page dedicated to her. I will leave it at the end of this blog for those that are interested. Her name is Jasmine Uhl and at 6 months of age her parents thought she had an earache...but it was so much worse. She has ATRT which is a form of brain cancer. She has since gone under several surgeries...had part of her brain removed, and has spent the past 2 years fighting for her little life. The parents were given the news last week that the cancer has spread to her stomach and that she had approx. 2 weeks left.
Now can you imagine...to be told that YOUR baby...only had a few short days left? I honestly don't know what I would do. It reminds me of when I was around 9 or 10. My brother had a little girl named Allison. She was born without the left ventricle in her heart and only lived a few short days. I remember how sad everyone was...but I was too young to fully understand. I don't want to go into much more because I don't want to relive that moment for my family...but I see what it has done to both my brother and sister-in-law.
I know it's sad to hear about babies dying...but it also makes me aware of how something so little as a potential earache can be so dangerous. Cancer is not prejudice of gender, age, religion, or anything else. It has really made me aware of what I 'complain' about. Because that's not my child. That's not my baby who is fighting for her last breaths and all I can do is watch and hope that she is not suffering. Oh.....my heart just aches for this little family. They have the most beautiful pictures of her...in her 'Angel Wings' posted on the site.
I really encourage everyone who reads this to please check out their page. I also encourage people...including myself to stop worrying/complaining about superficial, materialistic crap that really....makes no difference. Like....damn, so tired today, I hate Mondays, hate my too big house because I have to clean it all, my kids are getting on my nerves....etc. I know that I am guilty of it too...but after following Jasmine's story this week, it makes me think. She will NEVER get to complain about anything. Shouldn't she be able to complain about not being able to breathe on her own? Or to complain about having a feeding tube? Or, having to be on a morphine drip because the cancer has consumed her body? It just makes me sick thinking about this poor little angel...but soooooooooooooo thankful because my sweet sweet baby...is healthy.
She is alive. My bug is my mini-me and copies everything I do. She screams my name down the hallway and runs up and hugs my legs from behind. 'Helps' me get the clothes out of the drier. Likes to be scared by mommy and daddy. Chased up and down the hallway. Thinks petting Sassy is the bees knees. Saying things like 'Excuse me, thank you, sorry'....and seeming to understand them as she says them. She is my bug...and I will NEVER take anything...any moment for granted with her.
This poor little Angel Jasmine may not get to do these things, but she has been the most important thing to her parents. And I pray that she does get her Angel Wings soon...to end her suffering, and for her parents to have peace.
https://www.facebook.com/JasmineUhl
...............getting off my soapbox now. ;)
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